What is Dementia?
Dementia is a term that doctors use to describe what happens when someones brain stops working properly. People with dementia become forgetful and confused. Many of us forget things as we grow older. But for people with dementia, this forgetfulness gets very bad. They might forget how to do everyday things, such as getting dressed.
Dementia is a non-specific syndrome in which affected areas of brain function may be affected, such as memory, language, problem solving and attention. Dementia is not a disease in itself. When dementia appears the higher mental functions of the patient are involved initially. Eventually, in the later stages, the person may not know what day of the week, month or year it is, he may not know where he is, and might not be able to identify the people around him.
The most common form of dementia, Alzheimer’s disease, accounts for 50-75% of all cases of dementia. Another 20-30% is due to blood vessel disease (“multi-infarct dementia” or “mini-strokes”). The remaining cases result from a variety of less common disorders.
As the disease progresses, a person with Alzheimer’s disease may experience hallucinations and/or delusions. Hallucinations are when the person sees, hears, smells, tastes, or feels something that is not there. Delusions are false beliefs that the person thinks are real.
- Sometimes hallucinations and delusions are signs of physical illness. Keep track of what the person is experiencing and discuss it with the doctor.
- Avoid arguing with the person about what he or she sees or hears. Try to respond to the feelings he or she is expressing. Comfort the person if he or she is afraid.
- Try to distract the person to another topic or activity. Sometimes moving to another room or going outside for a walk may help.
- Turn off the television set when violent or disturbing programs are on. The person with Alzheimer’s may not be able to distinguish television programming from reality.
- Make sure the person is safe and does not have access to anything he or she could use to harm anyone.
- Discuss with the doctor any illness the person has had or medicines he or she is taking. Sometimes an illness or medicine may cause hallucinations or delusions.
Keeping the person safe is one of the most important aspects of care giving. Some people with Alzheimer’s disease have a tendency to wander away from their home or their caregiver. Knowing how to limit wandering can protect a person from getting lost.
- Make sure that the person carries some kind of identification or wears a medical bracelet.
- Consider enrolling the person in the Alzheimer’s Association Safe Return program if the program is available in your area. If the person gets lost and is unable to communicate adequately, identification will alert others to the person’s medical condition.
- Notify neighbors and local authorities in advance that the person has a tendency to wander.
- Keep a recent photograph or videotape of the person with Alzheimer’s to assist police if the person becomes lost.
- Keep doors locked. Consider a keyed deadbolt or an additional lock up high or down low on the door. If the person can open a lock because it is familiar, a new latch or lock may help.
- Install an “announcing system” that chimes when the door opens.
Caring for Someone With Dementia
Because of the intensity of care that may be required, it is often difficult for even a loving family to provide all the “around the clock” care that a family member suffering from dementia may need. If friends or family wish to provide these services it is very important for them to be aware not only of the person’s needs, but also of their own needs.
It is not uncommon for a spouse or children to feel that they have an impossible choice between being utterly overwhelmed (if they try to provide all the care) or feeling they are betraying their relative (if they send them to a nursing home). This often leads to the care provider becoming exhausted. Because of this it is often helpful to investigate local resources to help the care provider.
